A support group for those with POTS (Postural Orthostatic Tachycardia Syndrome)
A support group for those with POTS (Postural Orthostatic Tachycardia Syndrome)
We are a group of patients, who have POTS (Postural Orthostatic Tachycardia Syndrome) Our group includes our family, & friends. Many of us have more than one form of Dysautonomia as well as other medical conditions in addition to POTS. But, POTS is the one diagnosis we all have in common.
*We have no official affiliation with any groups and have no official status. We are simply a small support group based out of Dover, NH run by volunteers, family, & friends.
Our main focus is to meet in person, once a month, to provide ongoing face to face support for each other. When able, we have guest speakers that provide information on ways to help improve our lives with POTS. We also try to bring awareness to our community about Dysautonomia/POTS by meeting with government officials and through various other projects.
Many of us see Dr Khosro Farhad, He started this support group for us back in the summer of 2015, for that, we are ever so grateful. He is a rock star of a doctor and an amazing human. He goes above & beyond for his patients more than any doctor I have ever met. He has 3 locations in Portsmouth, Dover, & Boston.
DINET is an all-volunteer 501(c)(3) nonprofit organization dedicated to providing support for people living with dysautonomia. and providing greater awareness & education to the medical community. We provide information on our website and our quarterly newsletter. Information about dysautonomia and POTS is distributed to medical practices and support groups across the United States. Our moderated online forum offers support for patients and caregivers, providing a place to meet and discuss issues related to dysautonomia and chronic illness with others who understand the struggle. Our team of Medical Advisors answer questions from our members through our newsletter and also provide DINET guidance in offering evidence-based medical information on our site. Our volunteers answer questions from readers on our forum, our site, and our Facebook page. We also provide a database of physicians specializing and treating people with dysautonomia as well as a list of support groups. We hope you will explore, meet a few people and decide to become a member. We are here for you.
Dysautonomia International is a non-profit that seeks to improve the lives of individuals living with autonomic nervous system disorders through research, physician education, public awareness and patient empowerment programs.
Click below to visit the website
* Our in person meetings have been temporarily suspended, WDH/MGH - Dover has still not let us resume our in person face to face meetings. We will meet via Zoom when able, but this has not been a popular option. Please email the link below for more details. If You Have Any Leads On A Local Place We Could Use For Monthly Meetings, Please, Reach Out And Let Me Know!
(*Any change in meeting status will be posted on this page*)
Wentworth-Douglass Hospital, 789 Central Ave, Dover, New Hampshire 03820, United States
The contents on and through this website/support group page; such as text, graphics, images, and other material contained on the page ("content") are for informational purposes only and intended for the members of the POTS of the Seacoast in person support group of N.H. The content is not intended, nor should it be interpreted to be a substitute for as medical advice, diagnosis, or directions of any kind, i.e. (professional advice, diagnosis, or treatment).
Any person viewing this page is advised to, always seek the advice of your medical professional or other qualified health provider with any questions you may have regarding your condition/symptoms. Never substitute professional advice or delay seeking any treatment/consultation because of something you have read on this page/support group. POTS of the Seacoast expressly disclaims responsibility, and shall have no liability, for any damages, loss, injury, or liability whatsoever suffered as a result of your reliance on the information contained in this site. We do not endorse specifically any test, treatment, or procedure mentioned on the site. We are not doctors! By visiting this site you agree to the foregoing terms and conditions, which may at any time be changed or supplemented. If you do not agree to the foregoing terms and conditions, you should not enter this site.
If at any time you feel you are having a medical emergency, Call 911 and seek medical attention immediately.
This page should be considered nothing more than a blog group run by volunteers.
We do not share your personal information with any other parties. Any information collected is used only to communicate about support group events.